Joe's numbers on 8/13 were good enough to get his Vincristine and start his monthly 5 -day dose of Dexamethasone, but not to stay on his 1x weekly Methotrexate, and 1x daily Mecaptopurine. His Hematocrit and Platlets were good, but his WBC 1.8 and ANC 568 were low. The Dex naturally drives the ANC up so we were good to go on vacation to Priest Lake, ID but without many of our pills. Good and bad.
We head back for labs 8/27 to see if we are to resume the Methotrexate and Mecaptopurine at reduced levels based on his numbers.
He's been very happy and healthy. Making up for lost time all over the place. Our vacation in Priest Lake, ID at Hills Resort was fantastic. "Cabin Camping" as they call it was very fun and outdoorsy, lots of boating and lake time. The sandy beach was 50 feet away and lots of water activities followed. One of Joe's new friends had a mini-bike without training wheels. It's safe to say, after a test run in the driveway in Kirkland, Joe can now ride a bike without training wheels after practicing on the dirt trails in Idaho. BTW, big brother Paul can now water ski after some training and a variety of persistent parents! We met some great new friends that we look forward to traveling with again in the future.
Next up, "Chief For a Day" in Burien. Joe has been selected to represent Kirkland as the "Chief For a Day". They've made him a full uniform! There are 28 children representing 28 precincts in King County. We look forward to the police motorcade and "swearing in ceremony" Thursday 8/28. Our family will be picked up by squad car that morning and taken to the festivities!
Kindergarten starts 9/2! We are looking forward to more normalcy for Joe. Germs, germs stay away. Pray for smooth sailing!
Much Love,
Angie
1 comment:
Sending love your way, to the whole team. Kindergarten will be great, JoJo! Hope you enjoy your chief status for a day!
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