We have to make a major decision regarding the possibility of Joe participating in the Clinical Study of Standard Risk B-precursor Acute Lymphoblastic Leukemia by Friday this week 11/23.
We are reaching out to you because we know you’ll either:
- Read the enclosure because you just want to know what’s going as a friend or family member.
- Perhaps you’re in a situation that you can pass it on to someone in the medical field you are related to or are friends with to see what they think of it.
- Or you plan to study it (specifically the drug types) on the internet to see what you find out about it. (We find it very hard to surf on the internet for this type of stuff because you run in to so many horror stories; We're not really up to reading those right now.)
Standard Risk ALL is treated as follows:
Induction (28 days) – purpose of induction is to achieve remission; meaning leukemia is no longer detected in blood or marrow
Consolidation “C” (28 days) – designed to prevent the appearance of leukemia in the central nervous system and further decrease appearance of leukemia cells.
Intensified Maintenance “IM” (56 days) – allows the child to recover from prior treatment phases and administer less intense chemotherapy
Delayed Intensification “DI” (56 days approx.) – more intensive chemotherapy is given. First part of treatment is similar to induction, but includes new drugs.
Maintenance – lasts about 3 years for boys. Long term treatment that is necessary to achieve a permanent cure. Boys have shown needing longer treatment than girls (a year more).
If you are interested in reading the enclosures mentioned above, just leave a comment stating so and we'll be sure to get you the docs to read.
Thanks All!
4 comments:
I Will most defiantly be putting my feelers out in hopes to find anyone with any experience pertaining to these treatments.
It's allot of information for one Lil hero to take in and this is when id say "it takes a village" :)
So You just rest up and take care of yourself Lil Jojo Man~!
I Will hit everyone i know up for what they might know! :)~Tracy
I spoke with a few people I work with in Bellevue ~ Dr. Ledbetter (general surgery)one of favorites and Lisa Musso (pulmonary ARNP)and they both agreed that those who do the trials fair better than those who don't. As always, be educated (which you are) and trust the experts (which you know). Luckily JoJo is being treated by one of the best hospitals in one of the best cities. Children's is not messin around, we're kickin butt on Leukemia just like JoJo. Best of luck on Friday.
Simply ~ Tiff
HI Taylors,
Jean will be sending you info today.. She agrees that the trials are a good thing!
I am proud of all of you for doing the research and being educated! Jojo is a lucky boy...so many people care:)
Go Jojo!!
xox
Jen, Mark and boys
Angela Check your email as i just left you a message about this there :)~Tracy
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