Our Hero

Our Hero

Tuesday, September 16, 2008

Joe had another great week at school.  He's really getting into the rhythm with minimal complaints.  (OK maybe the sack lunches aren't exactly what he planned for himself, he loves warm food, and of course he misses his "guys" at home.)  He is learning a ton, and has made a best buddy already "Brandon".  We are so happy he is comfortable and happy.  Although full day started this week, with him falling asleep for :45 minutes are rest time!  I did notice upon arrival he wasn't the only one tired!  They do a great job of not overworking them but getting them into a routine.  Three recesses, lunchtime, story time, gym, music, art, rest, it's all good.  They literally fool them into learning!  Of course the "free choice" opportunity is Joe's favorite, it just so happens his teacher has a large collection of Lego's!  They've also agreed he can come home at anytime during the day, so if he is having a tough week we plan to go get him.

Wednesday 9/10 marked the start of Dexamethasone again.  I can't believe we have to face that every month, our sweet agreeable little guy disappears for moments for about 8-10 days.  He is mostly starving though, sweet talking me into making him mini meals he is starting to "get it" more, we have a good chuckle once in awhile about the sheer volume.  He runs a little tired during this course too, but we'll take it all to continue on this wonderful path of healing.

We need to say a prayer for Joe's teacher Mrs. Geary as these weeks will be harder on the classroom as well!  He will likely show signs of hunger, anger, but mostly lots of "no fair".  She claimed he did great Friday, but she is already developing a sweet spot for him.  He has a knack, it must be those big brown eyes.  She should of heard him in the car after school, boy did I get a talking too!  It's not his birthday yet, his X-Box is broken again, his lunch was cold, he really got it all out.  I guess it's good - lay it on me instead of publicly.  Poor guy, having a blow off session really seems to help.

He was also able to get both his monthly port dose of Vincristine and continue on Mecaptopurine M-F, and Wed. Methotrexate.  His numbers were exactly in the range of where the doctors wanted him to be 1300 ANC, 3.3 WBC, 36.1 Hematocrit, and 218 Platelets.  They were very pleased with how he looked and acted!  Great News!  He also got over his cold on his own too.  I'm sure the twice weekly (M-Tu) Antibiotic helped some, hey we'll take it.

Sat. 9/13 was Paul's first soccer game.  He was all over the place and scored a goal too!  He is so fun to watch.  Joe's up next Friday 9/19.  Surely the "SHS Orange Kindergarten Team" will be a hoot.

We are looking forward to another wonderful September week!
Much Love,
Kevin, Angie, Paul and Joe


Thursday, September 4, 2008

"Chief For a Day" worked out to be a great day for our family Thursday 8/28.  It started with a police escort from our front door by the Kirkland Police.  Two SUV vehicles and 2 motorcycle cops!  We caravanned to the motorcade meeting place in Kent, WA.  We then made our way from Kent to Burien to the actual location of the event, NW Police Academy.  The motorcade was a site to see with motorcycle cops from all over the city paving the way for the 14 "Chief's" being transported by limousine!  Rock star status!  Paul was able to ride with Joe in the limo along with some other siblings, because after all, he deserves the royal treatment too!!

Once at the event the "Chief's" were sworn in at a ceremony and escorted by two Academy trainee's for the entire day shadowing them through the chaos and excitement.  Joe had quite the audience watching him be sworn in; Mom & Dad, Kristi & Julia, Erika, Kai & Makana, Amanda, Luke & Lola!  There was a great lunch and a presentation of the "present" table.  It was literally like Christmas.  (I have to mention again - what to do with this child when reality sets in - like real soon here.  I'm not saying he doesn't deserve it all, but it's a real head game to be getting gifts year round for a 5 year old! ) Outside activities included a bounce house, helicopter demonstration, pony rides, free reign to explore the assault vehicles and the SWAT cars, a rifle demonstration, ability to operate bomb robots (the officers were quite amazed with Paul & Joe's ability to operate the controller - go X-BOX!), an attack police dog that bit and jumped on a "bad guy" in a stunt suit but only by the command of the "Chief's" as ordered by the police dog's commanders (got that on video).  It was a crazy "all about the kids day".  How special that we were nominated by friends and neighbors in the community.  He was honored in the local Kirkland Courier Newspaper for his role the event and even had his face shown on Channel 4!  What a day to be Joe!

The weekend was followed up by a stay at Yiayia and Papa's with a trip to the dollar store and of course as usual lots of special requests to their "short order cook" Papa, along with the day with Non and PT exploring all around the yard.

The boys started school at Sacred Heart School on Tuesday.  So adorable in their uniforms!  Both of their teachers are a fabulous fit for them.  Joe's teacher is committed to keeping Joe healthy and always has a watchful eye on him.  We feel very safe with Joe moving up and on into Kindergarten.  We are praying Joe and Paul have a great and healthy year at school.  Joe caught Paul's cold, but for now its minor with minimal sniffles and seems to be fighting his way through it on his own.  He has energy and no fever so Dr.'s say business as usual.  His numbers were elevated enough on Wed. 8/27 - (37.5 Hematocrit, 258 Platlets, 3.8 WBC and 1138 ANC) to restart oral chemos Mecaptopurine and Methotrexate at a lesser dosage and no chemo Sat.-Sun.

As if the start of Kindergarten wasn't exciting enough, soccer starts next Friday, practice and games all on Friday night for five weeks.  They start with a minimal commitment for the 5-6 year olds - so works perfect for us!

Look forward to updating everyone after our 9/10 appointment and a school report!